Today holding a baby three days old I wondered what the future has in store for her. I reflected on the craziness of the past 10 months and I contemplated the future. Yet, despite my circumstances I looked into her squinting eyes and felt hope.
Many of you have followed our journey with leukemia. Last year, April 18 –two days after Easter, Isabelle received a leukemia diagnosis. This launched us into to a year of nonstop travel to a children’s hospital, chemotherapy, procedures, and more. Our emotions and physical bodies felt the effects of back to back to back to back roller coaster rides.
Easing into 2018 we worked to find a new rhythm as we entered the maintenance phase of our daughter’s treatments. All things going well, we will wrap up chemotherapy treatments July 2019. We started to see life as a marathon now, not just a roller coaster.
The roller coaster returned three weeks ago
January 26 Ashley and I enjoyed a morning of pickle ball at the YMCA. Then disaster struck. Stepping back to make a shot Ashley felt a popping and tearing in her right knee. A trip to the emergency room with an x-ray learned little. This shoehorned us into a week of icing and waiting to get a follow up doctors appointment to learn more.
February 2 we scheduled a follow up and followed a hunch
Ashley got to see her doctor… And learned her knee would likely need surgery.
A hunch led us to take our older daughter to the doctor.
One finger stick, one urine sample, and one blood draw later our lives changed.
Our older daughter Christina received a type one diabetes diagnosis.
Clocking in with her blood sugar level around 800 Christina needed immediate hospitalization. So, off to Riley (children’s hospital) we went.
Two days later… February 4 we checked out with our heads spinning.
For the first time in years I really didn’t watch the Super Bowl. Exhaustion clouded out interest.
I hope to write more about what the diabetic life entails. But for now, imagine a five-year-old child getting stuck with needles nine times a day. Every day.
So now we still pray for the roller coaster to slow down. Hopefully Monday we will schedule with an orthopedic surgeon. Hopefully one day at a time Christina will get more used to all the needles.
Tonight, however, I need to rest in the arms of my heavenly father. I don’t know when the extreme days of life will slow down but today I look for peace in God.
Tonight I think of that little baby I held. My little girls need me to hold them strong. And I need to trust my father in heaven.