I’m always impressed how much Isabelle holds her own while asleep. Christina rolls over and clobbers her and Isa pushes back with all her tiny might. I stand amazed how they both remain asleep through the unconscious wrestling match.
Tonight I sneak in again for the 10:30 nightly bolus shot.
(This is the “long-term” insulin we give to kind of even out her entire day.)
Sporting a red light headlamp I look over at the girls. Christy reacts in her sleep and rolls over completely over her sister. Quickly rebuffed by an unconscious goose she rolls back over to me.
I pull up her shirt to access her belly and she quickly pulls it down. I repeat and she responds again unconsciously. So I decide to have some fun… I just keep popping the shirt up and she keeps pulling it down totally asleep. Finally about 10 times in I get the shirt to stay up and about 3 inches of her belly exposed.
Then the hand comes down to cover her belly right after I apply the alcohol swab. So I swab her leg. The hand rushes to her leg. Then I start to pinch her stomach for the shot and the hand rushes back there. I swab the leg again and repeat trying to give a shot in her belly. Finally I admit defeat as she rolls over again and I go for a quick shot in her rear.
Now you can visualize a typical nightly bolus shot
Some nights I can’t stop laughing. Some nights I snack afterword to relieve the stress of the effort.
About a month ago we got a continuous glucose monitor for her (Dexcom G5). It literally deserves the title “a lifesaver.”
She wears this little device for seven days at a time. Instead of us checking her blood sugar five times a day it checks her blood sugar every five minutes and reports to our phones. This little guy gives us so much more understanding about the roller coaster of her blood sugar levels.
For example, two nights ago her blood sugar plummeted randomly around 11:30 PM. Christina didn’t wake up to tell us this… Her monitor alerted us to a plunging trend at 52 and dropping. For reference, normal blood sugar level ranges between 70 and 170. 52 and dropping is very dangerous.
Worry stresses us as parents constantly with her diabetes.
Even with a CGM we still fight worry over whether her numbers will drop. We also worry because we have fought quite a few high numbers as well. High blood sugar levels lead to complications like eyesight troubles and limb extremity issues.
Fatigue mentally stresses us as well.
Every day, every meal, every snack we have to know exactly how many carbohydrates Christina eats. Every meal we have to calculate how high her blood sugar is and figure out how much insulin we are going to use to bring her levels down. It literally feels like a second job.
Conclusion for now
Ashley and I remain extraordinarily grateful for the time and place we get to live in. The care Christina receives and coverage we have boggle our minds. The task of parenting a diabetic remains daunting but Ashley and I thank God for his provision to date.