Life on purpose for others.
I love going to Chick-fil-A! It's all the little extras. I love when they respond "my pleasure! I feel special when they bring my food to me instead of just yelling out a number. I like the flowers on the tables. I like all the little things they don't have to do but they do. ... Continue Reading →
I still could not believe what I saw. My wife stood checking in my two year old under a sign which read, "Pediatric cancers and blood disorders." We've probably been here 15 times yet the shock remains. Our daughter has leukemia. Isabelle fluttered around more cheerfully than usual. She hopped up onto the scale for her... Continue Reading →
Watching Isabelle lose her hair is traumatic. We knew it would happen; yet seeing it happen is wrong. Now, when I run my fingers through her hair, usually a little bit comes out each time. Physical evidence of disease is harder than the thought sometimes We are about two months into treatment for Isabelle's Acute... Continue Reading →
I almost drove off the road. Catching myself I swerved into the Dunkin Donuts parking lot. "What did you say?!" I said. "Isabelle has Leukemia," Ashley replied. Without bruising, sickness, or exhaustion, my two-year-old was diagnosed with a deadly disease. She acted perfectly fine! Weeks and weeks of surgery, chemotherapy, steroids and other drugs followed... Continue Reading →
In answer to my question the girl pulled up her pant leg to reveal scars covering her calve muscle. "I want to be a PA because I fought cancer here when I was in high school." I looked over at our Pediatric Oncologist April and then back to the girl who was shadowing her today.... Continue Reading →
It was man versus machine! Waking up this morning I realized my daughter still did not have insurance because a machine said she cannot have it for another 28 days. I immediately rolled out of bed with the alarm clock as I do every day. But I had to lay down for another 10 minutes... Continue Reading →
My toddler with Leukemia does not have insurance as of today. "Your daughters do not have Insurance until July 1st (29 days)." the woman on the phone said. Today I learned what it feels like to be a number. Today is June 2nd (and unless something changes) we have: 28 days without insurance for either... Continue Reading →
The day began with a shout! Ashley elbowed me awake to tell me that our two-year-old was bouncing in bed and yelling "daddy" at the top of her lungs. It was 6:30 AM. I stumbled into the girl's shared room to see Isabelle standing there with a smile and Christy trying to put a pillow... Continue Reading →
Ashley and I took the girls to Ritter's frozen custard tonight it was a balmy, sunny evening – 81° and beautiful weather for frozen custard. We got our treats and then walked across the courtyard to find a seat. Christy and I got to the table first and I sat down and turned around. I... Continue Reading →
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