6 AM Alarm clock rings and Ashley immediately shushes me. She whispers (to a half deaf man😀) something about Isabelle. I make my way through the dark to find Isabelle curled up on the floor behind the door in our bedroom. Facedown, butt stuck up in the air she wandered into our room and fellContinue reading “Marathon”
Tag Archives: GooseStrong
Isabelle Bryan Goose. Girl. Grit.
A lot of people ask Ashley and I the meaning behind #GooseStrong. Ashley usually rolls her eyes (at me) and then I explain. This blog will be a bit of an explanation while I share what I have learned from my youngest daughter. Goose Isabelle’s life has been full of health problems. But you would neverContinue reading “Isabelle Bryan Goose. Girl. Grit.”
Dr April Rahrig, DO. A little beyond excellent.
I love going to Chick-fil-A! It’s all the little extras. I love when they respond “my pleasure! I feel special when they bring my food to me instead of just yelling out a number. I like the flowers on the tables. I like all the little things they don’t have to do but they do. Continue reading “Dr April Rahrig, DO. A little beyond excellent.”
Today at the hospital
I still could not believe what I saw. My wife stood checking in my two year old under a sign which read, “Pediatric cancers and blood disorders.” We’ve probably been here 15 times yet the shock remains. Our daughter has leukemia. Isabelle fluttered around more cheerfully than usual. She hopped up onto the scale for herContinue reading “Today at the hospital”
Hair loss, deadly bacteria, and lessons from Leukemia
Watching Isabelle lose her hair is traumatic. We knew it would happen; yet seeing it happen is wrong. Now, when I run my fingers through her hair, usually a little bit comes out each time. Physical evidence of disease is harder than the thought sometimes We are about two months into treatment for Isabelle’s AcuteContinue reading “Hair loss, deadly bacteria, and lessons from Leukemia”
The potential of trials
Learning from Leukemia
In answer to my question the girl pulled up her pant leg to reveal scars covering her calve muscle. “I want to be a PA because I fought cancer here when I was in high school.” I looked over at our Pediatric Oncologist April and then back to the girl who was shadowing her today.Continue reading “Learning from Leukemia”
Standing in the Gap
It was man versus machine! Waking up this morning I realized my daughter still did not have insurance because a machine said she cannot have it for another 28 days. I immediately rolled out of bed with the alarm clock as I do every day. But I had to lay down for another 10 minutesContinue reading “Standing in the Gap”
Remember this fact about people and it will change everything.
My toddler with Leukemia does not have insurance as of today. “Your daughters do not have Insurance until July 1st (29 days).” the woman on the phone said. Today I learned what it feels like to be a number. Today is June 2nd (and unless something changes) we have: 28 days without insurance for eitherContinue reading “Remember this fact about people and it will change everything.”